WHAT'S NEW?
13 October 2011 - The Fund held a reception at Government House, Sydney, in the presence of Her Excellency Professor Marie Bashir AC CVO, Governor of New South Wales.
A full report, including downloadable copies of the posters can be found here.
9 SEPTEMBER 2011 - The Fund is pleased to announce a reception to be held at NSW Government House in the presence of Her Excellency Professor Marie Bashir AC CVO, Governor of New South Wales on 13 October 2011 for our significant donors and supporters.
29 JULY 2011 - The Fund is very pleased to announce that donations last year now indicate a total of AUS$399,912. The generosity and spirit in which the donations have arrived from around the world allows the researchers at the Fund to open up new lines of inquiry sooner. Our sincere thanks to all those who contributed. We will update our cureplan and post details here shortly.
21 JUNE 2011 - FUNDRAISING - Meniere's Resources Inc are a registered USA not for profit Meniere's support group. They have started a fundraising initiave to sell wristbands and accept donations to assist our research. The link can be found here http://www.shopmenieresresources.highpowersites.com/research_fundraiser.html
6 JUNE 2011 - QUESTIONS - Those diagnosed with Meniere's and have a Facebook account are asked to answer a few simple questions on our facebook page http://www.facebook.com/Menieresresearchfund
2011 FUND RAISING APPEAL - SEE, HEAR AND READ INTERVIEWS OF OUR KEY PEOPLE TALK ABOUT OUR RESEARCH PROGRAMME
1 JUNE 2011 UPDATE - The Fund is pleased to announce that our annual appeal has commenced. Please give to help fund our exciting research. Donation forms have been mailed in time for a tax deduction this tax year or can be downloaded here. For those not on our mailing list, please contact us by clicking here or the Fund will accept your tax deductable donation on-line and by other means by clicking the "donate now" button to your right.
AUSTRALIAN DONORS
If you are an Australian taxpayer, a tax deductable donation to us means you give to the Fund and claim a refund from the Australian Tax Office. International donors seeking a tax deduction should check with their local advisors that Sydney University Medical Foundation's charitable status is recognised by that country.
USA DONORS
For USA donations, the University of Sydney USA Foundation provides a tax advantaged way for USA taxpayers to support Meniere’s research at the University of Sydney by donating to our Fund. The foundation is incorporated in Washington, DC as a tax-exempt 501(c)(3) charitable organisation. Gifts to the Foundation can be claimed as tax deductions by US taxpayers. US donators, please email This e-mail address is being protected from spambots. You need JavaScript enabled to view it with an instruction to direct your donation to The Menieres Research Fund, your preferred method of payment and information required to have the claimable receipt forwarded to you. Alternately, write or telephone, The University of Sydney USA Foundation, PO Box 3906, Ithaca, NY 14852-3906. Phone: + 1 410 733 9444
UK DONORS
The Friends of the University of Sydney UK Trust allows alumni and friends residing in the UK to support the University of Sydney through tax-advantaged giving. Gifts to the trust are tax deductible for UK residents on both income and estate taxes. Donations can be made to the Trust online (http://uk.virginmoneygiving.com/charity-web/charity/finalCharityHomepage.action?charityId=1002564) or by contacting the Trust at Friends of the University of Sydney UK Trust, Administration Manager,The Britain-Australia Society, 59 Buckingham Gate, London UK SW1E 6AJ Phone: +44 (0)20 7630 1075 Fax: +44 (0)20 7828 2260 Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it
Whether donating on-line or by other means, please specify that you wish your donations to be used for Meniere’s research at the University of Sydney – Sydney Medical School Foundation
Click the interviews below to hear about 2010 and the coming year...
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WE HAVE RAISED AUS$1.3m SINCE 2003 AND SPENT AUS$580,129 ESTABLISHING OUR RESEARCH FACILITY
We have updated our target thermometer (at right). The Fund announces today (20 April 2011) that after having established the laboratory and employed 2 full time trained research staff, it has lifted its total funds raised target to $AUS2.5m, up from $AUS1.5m. The additional money, when raised will be directed to broaden the lines of inquiry. Since the start of the year, AUS$161,945 in donations and grants have been received by the Fund to assist us in our quest for a cure for Meniere's Disease.
OUR RESEARCH TEAM IS EXPANDING
The Fund is pleased to welcome the arrival of Yasuhiro Chihara (‘Yas’) of Kameda Medical centre of Tokyo University, Japan to join our research team. He brings his wife and 2 children and will work at the Brain and Mind Institute and live in Sydney. His details can be found here...
Yas (centre) is pictured below with his family and the families of Bruce Kirkpatrick, Stephen Spring and Prof Bill Gibson with Dr. Daniel Brown and Prof Ian Cuthoys at Yas' welcome dinner 3 April 2011.
Click here for audio transcript
President’s Message,
Meniere’s Disease is a disorder of the inner ear. It can devastate the lives of those afflicted and create turmoil for those who care for them. Working lives are often disrupted and careers can be brought to an end. The normally ordered and busy lives of otherwise healthy people can suddenly become totally unreliable.
There are many unresolved questions surrounding the condition. For nearly 150 years the cause and possible cure remains illusive. While medical and surgical advances to alleviate the affliction have been encouraging, in an Australian initiative, the Meniere’s Research Fund was established in 2002 as a development from the Meniere’s Support Group of NSW and is stepping up the research effort.
Our research program has been developed by experts in the field, our Professorial Research Committee and will be carried out over 3–5 years. Experience to date has shown promising leads on how the cure might be found.
In 2009, the various State based support organisations for those diagnosed with Meniere's Disease amalgamated into a national body, ‘Meniere’s Australia Incorporated’ and our Fund became an independent fundraising corporation, ‘Meniere’s Research Fund Inc’. We look forward to working with Meniere’s Australia Inc to develop support and a cure for those afflicted by Meniere’s Disease.
The most significant development thus far has been the return from the US of our principal researcher Dr. Daniel Brown and the establishment of the world's first Meniere’s Research Laboratory at the Brain and Mind Research Institute, Sydney. He has commenced human studies and collaberative research projects and trials to develop a non invasive diagnostic tool for Meniere’s Disease to assist determining the conditions that lead to the symptoms.
Our programme of research is investigating ‘hydrops’- swelling of fluids in the inner ear canals - as the probable cause and is isolating the conditions that lead to it's development.
The Fund will continue to finance a small, but strong research team to explore and build on the findings from Meniere’s research being carried out by scientists in Australia and other countries.
We are confident that with your help and long term support our research program will lead to the cure.
Bruce Kirkpatrick OAM
President
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